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Tuberous sclerosis complex is a genetic condition that causes the growth of noncancerous (benign) tumors. This happens when cells grow out of control and divide more than they should. These benign tumors can rarely go on to become cancerous.

The tumors caused by tuberous sclerosis complex are called hamartomas. Hamartomas can grow in many parts of the body. They mostly affect the skin, brain, kidneys, heart, eyes and lungs.

The Nemours Children’s Tuberous Sclerosis Program is a multidisciplinary clinic that allows patients to be seen by several specialists in one appointment. By working together, your child’s care team can provide the best quality of life for your child.

The providers in the Tuberous Sclerosis Program will have a full understanding of your child’s unique needs, as they work together to provide the best treatment options possible. Your child’s care team will include specialties such as neurology, nephrology, cardiology, genetics and more. Nemours is also proud to be recognized as a TSC Clinic by the

• Comprehensive epilepsy care for your child, including new medications for Tuberous Sclerosis Complex treatment, neurostimulation and surgery.
• A multidisciplinary care team approach to ensure the best quality of care for each child.
• Extensive therapy and rehabilitation services are offered, including occupational therapy, physical therapy and speech therapy.